Cerebral Palsy Consortium Newsletter
Vol. 1, no 2, September 2005.
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A word from the editors
A recent conference on Cerebral Palsy leads us to
believe that research in this area is at a crossroads. To improve
social participation in children with Cerebral Palsy, we have
identified the following four priorities. First, we must document the
most common interventions and establish thier effectiveness in the
children treated. Researchers, practitioners and families must come
together and share their expertise to facilitate this task. The
information gathered will permit a better understanding of the issues,
help organize the data, and establish research priorities and actions
within the community. The documents presented at the colloquium in
June, of which several appear in this newsletter, demonstrate that
Québec researchers understand well the issues at hand, and are
participating fully in the necessary research.
Enjoy your reading!
Line Nadeau Ph.D.
Francine Malouin Ph.D.
New on our Website!
Forum:
The Cerebral Palsy Consortium (CPC) forum is
now open to members of the CPC. You can find it at our Website
(www.consortiumpc.ca). Don't hesitate to communicate your expectations
for the forum. The goal is to provide a place for researchers, school
and health practioners, and familiy members to exchange information and
ideas.
Social and Cultural Events:
The new social and cultural events web page is now ready to publish
information from organizations and associations about up-coming
activities and/or services, specifically targeting people with Cerebral
Palsy. Let us know what events will be taking place in your region!
Coming soon
October 27-28, 2005
A conference entitled Naissance à risque :
Éthique, interventions et nouvelles avenues de recherche,
will be held at The Manoir Victoria in Québec. To register or
for further information please contact Ms. Annie Fraser at
annie.fraser@psy.ulaval.ca
For the entire program click here
Research File
Mainstreaming and Social Participation of
Children with Cerebral Palsy
Line Nadeau,
Ph.D. and Réjean
Tessier Ph.D.
Fonds de recherche sur la Société et la Culture. CIRRIS
The object of the study was to create a portrait
of social adjustment using a group of children living with Cerebral
Palsy (n=60), who are mainstreamed in schools throughout 7 regions of
Québec. The study results indicate that children with CP
(particularly the girls) have fewer friends, experience more feelings
of social isolation, and report more incidents of verbal and physical
intimidation than their peers. A full report will soon be available on
the CPC Website.
Conference Report
The following is a brief résumé of
the objectives and results of research projects presented during the
Cerebral Palsy Conference, held June 8, 2005 in Montréal. Please
note that summaries from all presentations are available in the
headings Current projects on
the CPC Website.
Registre de la paralysie cérébrale
au Québec (REPACQ)
Pigeon N.,
Koclas L., Lamarre C., Desjardins C., Dagenais L., Shevell M.
Objectives:
- To assess the prevalence and distribution of
Cerebral Palsy (CP) in Québec.
- To identify the risk factors.
- To document the difficulties in children with
Cerebral Palsy in order to improve the quality of care.
Results:
- Many children are already registered (104 in
Montréal, 15 in Hull, 21 in Sherbrooke, 30 in
Laurentides/Lanaudière areas, and 15 in Québec.
- At this time, they hope to register all
children born between January 1, 1999 and December 31, 2001.
CPEngine
Snider L.,
Korner-Bitensky N., Richards C., Malouin F., Gorter JF., Thomas A.,
Kloda L., Levin M., Saleh M.
CPEngine is a Website designed to summarize the
effectiveness of rehabilitation interventions in children with Cerebral
Palsy.
CPEngine:
- Is a virtual terminology data bank whose
overall objective is to include the most effective therapeutic
interventions for children with CP.
- Is for practioners, students, administrators
and families.
Note: The CPEngine is not yet online. The launch
of CPEngine will be posted on the Cerebral Palsy Consortium Website.
Étude québécoise sur les
services de réadaptation dispensés aux enfants avec
paralysie cérébrale : résultats
préliminaires chez les enfants d'âge scolaire.
Malouin F.,
Snider L., Korner-Bitensky N., Dumas F., Roy M.A., Lepage C., Kennedy
E., Mazer B., Saleh M., Levin M., Gisel E., Lamarre C., Bilodeau N.
Sample: 161 therapists (88 occupational therapists
and 73 physical therapists)
Little information exists concerning the evaluations and therapeutic
interventions given to school-age children with Cerebral Palsy by
occupational and physical therapists. The objective of this study was
to create a profile of therapeutic services given to the children based
on the two case studies.
- Preliminary analysis reveals that occupational
and physical therapists identify a comparable number of problems but
that occupational the nature of these problems differs.
- This priliminary result illustrates the
complementary roles physical and occupational therapists play in the
treatment of CP.
Determinants of life quality in children of
school age cerebral palsy
Majnemer A.,
Shevell M., Law M., Rosenbaum P., Poulin C.
Sample: 80 children with CP
Objectives:
- To determine the quality of life of children
affected with CP, particularly from the point of view of the children
and their parents.
- To indentify the factors associated with the
physical and psychological well-being of children with CP.
Results:
- About half of the children reported a very good
quality of life.
- The type and severity of CP impacted the
child's level of function but not the quality of life.
- Physical well-being is significantly associated
with severity of impairment and functional limitations
- Children with hemiplegia demonstrated a greater
degree of physical well-being than those with diplegia.
The following will appear in our December 2005
newsletter:
- Conference Report: Conference Naissances à risque :
Éthique, interventions et nouvelles avenues de recherche,
October 27-28, 2005.
Do not hesitate to contact us if you have
any information regarding events or projects concerning the social
participation of children with cerebral palsy. We will be happy to add
this new information to the news bulletin or to our website.
Thank you and have a great autumn!
Writing by :
Marie-Hélène
Ouellet
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